A Poem from the Heart

You are positive for Brugada he said with regret one gray day
How you know and love life now, I promise, is how it will stay
I dont believe you and looked on with teary disbelief
Do you think its as simple as turning over a new leaf
This morning I was healthy and now betrayed by my own heart
You say just walk out with the “news” and make a new start?
Yesterday was full of hope and today life has changed forever
But this little computer will guard your life because its ever so clever
I dont want this, didnt ask for it, cant you make it go away
You were born with this, a flaw, a mutation within your DNA
No medicines, no cures, no vitamins to keep me safe and alive
No but you can dance, ride your horses, go to the gym, and drive
But a shock awaits me, like a crystal ball it will tell me when I should of died
And wont you be happy knowing this little ICD held back the tide?
Why on earth would anybody want to know when they were about to meet their fate
Its all irrelevant, we now know whats wrong, do it before its too late
But my children will get it and for them surgery awaits
Not necessarily but get them checked, do not hesitate
But I want to live why do I get a death sentence at 34
Death sentence? With this you will live even more
I dont want a machine invading my body sitting in my chest
But without you will be like your father and also the rest
Do you elect to have surgery, do I get your consent, I need a verbal yes
Do you leave me a choice with my death in my face and forced with this mess
Dont be sad, its what best and now what a long life youll lead
I know this isnt what you wanted but sadly its what you need….

Written by Alicia Burns
A conversation between my doctor and I

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8 Comments (+add yours?)

  1. Renee
    Aug 11, 2013 @ 20:18:51

    I can so relate to this .. except I woke up in the hospital with my little friend in my chest after a SCA. Very well said .. you’re not a lone. I was 31 .. and have now had my device for nearly 16yrs. Big hugs to you xxx

    Reply

  2. aliciatburns
    Aug 11, 2013 @ 14:43:40

    Reblogged this on Brugada Girl and commented:
    This is a poem written by me when I was diagnosed. I put the conversation between myself and the electrophysiologist in a poem

    Reply

  3. Life and Other Turbulence
    Mar 30, 2013 @ 15:50:36

    Beautiful! Wishing you a lifetime of good health and a multitude of happy memories to come. Keep on riding (it’s the BEST medicine) and look forward to more of your writing too.

    Reply

  4. aliciatburns
    Mar 28, 2013 @ 20:34:11

    Write not right lol

    Reply

  5. Jane Burns
    Mar 28, 2013 @ 20:18:11

    Great poem, great poet!! xoxo

    Reply

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