Brugada Girl ™

I’m sure you have all heard about the World Summit for Brugada Syndrome in Milan, Italy happening in February 2017? I hope you have! It’s in regards to an ablation that can reverse ventricular fibrillation in Brugada Syndrome! The pioneer doctor of this procedure is Dr. Carlo Pappone. His secretary reached out to me and said he has invited me as a guest to fly, stay and be a part of the World Summit! Can you imagine!!? I am so honored! Shocked really, that Dr. Pappone would personally invite me to see what this miracle is all about! I haven’t been asked to go as a patient as I haven’t (luckily) experienced V Fib yet. I’ve been invited because I try to be a very visible aspect of the online Brugada Syndrome community and despite me trying to stay mostly anonymous, they have noticed me. I guess I’m more ‘visible’ than I thought haha!  But…don’t hate me…I had to say no. With such a large family, I wouldn’t want to go without all my children and my husband along for such a historic event. It would just be too difficult to travel either alone or with my family so sadly I had to say ‘next time.’ Anyhow, I just wanted to share the news! Feel free to read up about the World Summit on their website http://brugadasyndromeablation.org