Brugada Girl ™

Does everyone know what dead man walking means? Its a saying referring to a person who is alive but its like they aren’t really here. Like they are already dead. Let me clarify, I don’t feel that way, but Doctors treat me that way. Not my EP of course because he is my friend and confidante in the world of Brugada. Also my primary Doctor is the absolute best you can find. She’s not afraid of me and listens to me. Pretty much, whoever was my Doctor before diagnosis stuck with me. But to the rest of the medical field, I am a liability. I have noticed, since diagnosis, Doctors are very hesitant to treat me for fear of causing cardiac arrest. When they see me for the first time, and I go over my diagnosis, they look at me like they saw the devil. Like Im some demon that came to steal their medical license or smack malpractice on them. Ive seen the nervousness, the annoyance, the fear. Do you all know what Im talking about? Something as simple as a headache, or a common cold, or some smaller ailment, is like a curse because most Doctors prefer a “hands off” approach with Brugada patients. Look, I understand…a little. A Doctor doesnt want to mess up and cause death. We are already one breath away from it so who the hell volunteers to take us on as patients? But you know what? We are still alive. We will get sick and have stomach aches, headaches, tooth aches. We will still need care for these non cardiac related issues. Stop treating us like dead men walking. “Hey your ready to drop dead any second anyway! The sniffles is the least of your concern!” Im sick of this attitude. If your afraid, then how about informing yourself a little bit? How about becoming familiar with what aggravates Brugada? What meds are forbidden? Knowledge is power…I always say that. Even for Doctors.Everyone needs more wisdom. No one is exempt. Im getting very frustrated as you can tell. I have a lot of little medical conditions. Either they don’t listen to me because heaven forbid I know more about Brugada then they do. Or they treat me like Ive come for their blood by selfishly coming to see them for help? ” How dare you walk into my office with a difficult case!” Im not dead yet. We aren’t dead yet. We still need care for multiple things through the course of our potentially long lives. Stop being afraid or even worse, being down right annoyed that I have the gall to be your patient. Im not a leper who should be cast off to some remote place in the world. I guess we are dead men walking.But none the less we aren’t all heart, we have other needs and problems that we turn to you for care. Man up! Try living with this shit…