Follow Me
Like what you are reading? Want to follow my blog? Well here are a few ways;
On the home page of the blog, to the right, is a link to sign up for new posts through your Email. You will receive an email every time I write a new post
Email me at BrugadaGirl@yahoo.com
Donate money to SADS ( Sudden Arrhythmia Death Syndromes) through my father’s Memoriam Fund, Robert De Filippis
Brugada Girl ™ 
Jun 20, 2017 @ 06:12:52
Idk Whats going on with me but i have been having chest pain i went to the er and they said my ekg had a pattern that looked like Brugada so now i have my first appt with a Cardiologist this week and im kinda freaking out i am 31 years old
Jun 20, 2017 @ 16:59:23
I know this in between time is very scary. Just hold tight and relax until they are sure…
Apr 05, 2017 @ 09:18:08
I got for surgery next week I’m 29 I’m getting the Subcutaneous Implantable Defibrillator.
Apr 06, 2017 @ 06:53:30
Don’t be afraid! It’s actually there to help you. At first I hated having an ICD but now it comforts me 🙂
Oct 19, 2015 @ 10:08:18
ciao cara Alicia, ti scrivo per dirti che ho portato mio figlio dal professor Pappone e che ci ha dato grande speranza per eseguire l’intervento chirurgico che guarisce dalla sindrome di brugada. Lui opera insieme al professor Joseph Brugada qui in Italia.
Ho inviato oggi una mail ai dottori Brugada per capire meglio il post operatorio e i tempi di recupero….vediamo la luce finalmente!!!
Dovremo capire la strada ma ora una strada c’e’ e anche una grande speranza per il futuro.
Se ti va , fammi sapere cosa ne pensi senza farti nessun problema.
un grande abbraccio e te e ai tuoi figli.
Carla.
Oct 20, 2015 @ 09:01:40
That is wonderful news Carla! Although they see hope in doing an ablation, I wonder if they will do this on all patients. Some times, even though they discover a cure, it takes time and more research before they actually do it. I have not heard much about it. I am hoping this will be available to all patients . Your son is getting this done?