Follow Me

Like what you are reading? Want to follow my blog? Well here are a few ways;

On the home page of the blog, to the right, is a link to sign up for new posts through your Email. You will receive an email every time I write a new post

Email me at

Donate money to SADS ( Sudden Arrhythmia Death Syndromes) through my father’s Memoriam Fund, Robert De Filippis


6 Comments (+add yours?)

  1. gary tritle
    Jun 20, 2017 @ 06:12:52

    Idk Whats going on with me but i have been having chest pain i went to the er and they said my ekg had a pattern that looked like Brugada so now i have my first appt with a Cardiologist this week and im kinda freaking out i am 31 years old


  2. Therese Mclaughlin-Barnes
    Apr 05, 2017 @ 09:18:08

    I got for surgery next week I’m 29 I’m getting the Subcutaneous Implantable Defibrillator.


  3. carla
    Oct 19, 2015 @ 10:08:18

    ciao cara Alicia, ti scrivo per dirti che ho portato mio figlio dal professor Pappone e che ci ha dato grande speranza per eseguire l’intervento chirurgico che guarisce dalla sindrome di brugada. Lui opera insieme al professor Joseph Brugada qui in Italia.
    Ho inviato oggi una mail ai dottori Brugada per capire meglio il post operatorio e i tempi di recupero….vediamo la luce finalmente!!!
    Dovremo capire la strada ma ora una strada c’e’ e anche una grande speranza per il futuro.
    Se ti va , fammi sapere cosa ne pensi senza farti nessun problema.
    un grande abbraccio e te e ai tuoi figli.


    • AliciaB
      Oct 20, 2015 @ 09:01:40

      That is wonderful news Carla! Although they see hope in doing an ablation, I wonder if they will do this on all patients. Some times, even though they discover a cure, it takes time and more research before they actually do it. I have not heard much about it. I am hoping this will be available to all patients . Your son is getting this done?


Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: