There MAY be a possibility that a support group will start in NJ/NY via SADS (Sudden Arrhythmia Death Syndromes). Of course we would need enough people in the area to participate to get something going. How many of my readers are in this area and would be interested? You can message me on Facebook,email me at brugadagirl@yahoo.com or comment here. Please pick from one of the 3 options about which one you prefer A) A larger public support group B) A smaller setting like one on one for coffee or lunch C) Support groups aren’t something you are interested in
Brugada Girl ™
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Brugada Girl ™ 
Jan 13, 2016 @ 09:24:46
Hey there Alicia, I think I may be doing something wrong on here lol. I would be so interested in joining. I have so many questions wondering if everyone is feeling the same or going through the same as I. Please keep me posted I will be willing to help you set it up!
Jan 13, 2016 @ 11:52:21
SADS is the one who will be putting the group together but they are working with me to set it up. I will let you know when something is coming together. You can always email to talk as well brugadagirl@yahoo.com
Jan 13, 2016 @ 08:22:27
I would love to join please keep me posted.
Jan 13, 2016 @ 11:49:12
Will do!
Dec 17, 2015 @ 22:55:51
Hi Alicia – would this group be specifically for Brugada folks or for anybody with any arrhythmia diagnosis?
Happy Christmas to you and your family, and best wishes for a wonderful and HEALTHY New Year!
hugs
C.
Dec 18, 2015 @ 09:05:12
Hi Carolyn! Ive been talking with SADS and they were mentioning possibly a group if enough people in this area are interested. I believe it would be for Brugada only. But being its so rare, its hard putting together a group. Ive asked on Twitter, here on my blog and on Facebook and there aren’t to many in the NJ and NY area. Its going to have to be a work in progress as word gets to people here in NY and NJ. Merry Christmas to you and yours!!