Email me if you need to…

On this blog many people comment about what I write. I do reply to all comments but Im not sure if you are notified that I answered any questions. I feel bad because I don’t want anyone to think they commented and I ignored them. If you leave a comment in hopes of a reply and dont get a response or notification of a response, please email me. I like talking and helping all my readers:

BrugadaGirl@yahoo.com

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1 Comment (+add yours?)

  1. Ryan Deckert
    Nov 29, 2014 @ 09:56:58

    Alicia,
    I am a 33 year old male who was just recently diagnosed with Brugada this Thanksgiving morning. I woke up with chest pains and shortness of breath, and while I knew I wasn’t having a heart attack, I was also aware that seething was not right. Of course with the myriad of testing done, the conclusion was that, due to a recent flulike sickness, my chest wall had expanded a little and coupled it with a bout of acid reflux. What I WASNT expecting to hear was that I had abnormalities in my EKG. “Mr. Deckert, you have a heart condition” is a sentence I never thought would be any sort of reality whatsoever. I was diagnosed with Brugada that day and it’s been 48 hours since and I feel my world has been turned upside down. All the unexplainable bouts with fainting since grade school and even now, the dizzy spells without reason have never made sense or had any comprehensible explanation…until now. I’m scared to sleep, to eat, to exert myself in any way, to essentially do anything and I HATE that; I can’t help feeling fragile and helpless. I will not find out about scheduling my surgery until this following Monday after the holiday. In any case, it’s all-consuming and would honestly just need some words of advice or encouragement from someone who knows what I’m going through. My family has all been wonderful and loving regarding this situation, but to relate with another who shares my experience I think might help in some capacity. I read your post on myheartsisters and was very moved. I feel like I’m all over the place (as is evident in this post) and I’m making myself a wreck mentally and emotionally just by letting Brugada dictate my every thought.

    Reply

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