There is a new research project called the Brugada Project. Brugada patients can submit their medical data and DNA to this group of doctors in Massachusetts to help advance research measures for BrS. Im sharing the link here so you can participate if you like. They will need permission to access your medical records and will provide a saliva kit to test your DNA. https://brugada.linkmyheart.org
Pam Ferris
Jan 25, 2022 @ 09:51:26
Thank you.
AliciaB
Jan 25, 2022 @ 09:55:06
No problem. I’m happy to share it 🙂
Anonymous
Jan 25, 2022 @ 09:50:32
Thank you. I’m forwarding this to my daughter who has a pacemaker/defib.
AliciaB
Jan 25, 2022 @ 09:54:00
Thank you for sharing it!
Anonymous
Jan 25, 2022 @ 09:49:06
Thank you. I’m forwarding this to my daughter who has a pacemaker/defib.
Anonymous
Jan 24, 2022 @ 21:59:59
Thanks for this, Alicia. I just filled out the online info and gave my consent. I hope you’re doing well and staying safe.
AliciaB
Jan 25, 2022 @ 05:58:58
Thank you, doing well. Hope the same for you. Let us know how the research turns out!